Patient health data is the single biggest bottleneck for advancing healthcare
Healthcare is going through a tremendous phase of innovation. Healthcare data is finally coming online due to the government mandate to adopt Electronic Medical Records (EMR). AI and machine learning is advancing at an exponential rate. Soon, precision medicine will finally become reality. Doctors will be able to better diagnose my condition based on data from millions of research papers that no single human can possibly read in his lifetime. They will prescribe me the best treatment available not because it’s “what generally works”, but because millions of other patients who are similar to me in age, sex, and genetic makeup saw a positive impact from the treatment.
While I have no doubt that is the future, I think one fundamental thing that is often not talked about is that these advancements all require a fundamental ingredient, holistic patient health data at scale. In my opinion, it’s not the lack of algorithms, but the lack of access to useful health data that is the single biggest bottleneck for advancing healthcare treatment. Any researcher will tell you that a simple algorithm with lots of data will generally hold more predictive power than an complicated algorithm with little data. As far as I know, this type of data just simply doesn’t exist today for research. This is because sharing healthcare data is very hard. There are a number of reasons for this: